Today marks 10 months since Jillian was born. Wow, where do the days, weeks, and months go? We are quickly approaching 1 year and that is so hard for me to believe. March 5, 2011 will be here so very soon. 
Love my sweet girl's feet.
Flowers for the winter season on her grave. I put a bouquet of the silver ones out before Christmas and part of them blew away, so one weekend when Jack's mom was visiting she brought a bouquet of the pink roses with her she wanted to put there so we figured out a way to put them in the middle of the silver flowers. I plan to get some other flowers for her birthday and put on the grave. Tomorrow also is a significant date for us. One year ago on January 6, 2010 we get the phone call from Dr. C who did the amnio, with the results confirming Jillian had Trisomy 13. There are so many dates that are significant to the journey we have been on, but I honestly don't think I will ever forget any of them. Jillian you have been thought of sooo very much during this first holiday season without you with us. You are thought of every single day and loved more than you will ever know.
Renay,
ReplyDeleteI noticed your blog in my Trisomy 13 google alerts, and wanted to connect with you. You are welcome to share Jillian's story on the livingwithtrisomy13.org website, Treasured Memory Pages, there is also a support group for those who have said goodbye all too soon.
http://www.livingwithtrisomy13.org/content.php/194-treasured-memories-album
Did you also know that March is Trisomy Awareness Month?
WE like to celebrate March 13th as Trisomy 13 Awareness Day.. just for your info if you wanted to do anything in honor of Jillian. There are so many wonderful programs that do help the trisomy families.
Or you can create you own for something locally. Its all up to you but wanted to share that with you...to get your creative juices flowing. As you know, the heart is happiest when it beats for others.
Also, the link to the site below needs to be adjusted, the straight trisomy13 org link you share below goes to an ad site.. the correct link is
http://www.livingwithtrisomy13.org
Recently we are going through a webmaster change so the groups are adjusting to the new forum.. but we have a very active YAHOO group that if you send me your email I can send you an invite.
Angel Blessings,
ThereseAnn, mom to Natalia 10yrs (full trisomy 13)