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Saturday, June 26, 2010

Jillian's Story Part 1

We found out in August 2009 we were expecting our second child in April 2010. We went to the doctor in September and were given a due date of April 27, 2010. We were so excited! Everything went well, considering I was sick a lot, just like I was with Jansen. We went to our monthly appointments with good reports until our visit in December. I was around 19 weeks and our doctor could not officially determine our baby's sex, which she thought was a girl, so she wanted to see us back in a couple of weeks so she could confirm "girl" before Christmas. We went back and she was pretty sure our baby was a girl but she also informed us that she could not see all the chambers of her heart well and her brain was also concerning her. She referred us to a high risk OB doctor in Little Rock who we saw on December 22, 2009. This was one of the hardest days of our life up to this point. Dr. C confirmed through a 1 hour ultrasound that our sweet girl had multiple abnormalities. She only had 3 chambers in her heart, her brain was underdeveloped, her stomach was beside her heart compressing on her lung, her kidneys looked to be full of cysts and her umbilical cord only had 2 vessels instead of the normal 3. We were not prepared for this news. We just thought this was routine precaution on our regular OB's part. Dr. C encouraged us to do an amniocentisis this day however I needed time to process our news. We left his office and returned to our home where about 30 of our most closest friends gathered around us that night in prayer for our precious daughter. Our life at this point has taken a turn that we never imagined would happen.
We decided to proceed with the amnio and called and scheduled that for 1 week later on December 29, 2009. We did not want to tell Jansen much at this point until we know for sure what we are facing. We celebrated Christmas with our families however we were struggling thinking about the unknown. We went to the appointment for the amnio, which was somewhat painful. Our doctor informed us he suspected a chromosome disorder possbily Trisomy 13 or 18 based on the findings in the ultrasound. We left his office that day prepared to wait another week before finding out the results of the amnio. On January 6, 2010 Dr. C called my cell phone and informed me the results of the amnio confirmed our daughter had Trisomy 13. We now knew what we were facing in the coming months. He informed us our options were to terminate the pregnancy or to continue the pregnancy. To us there was no option to terminate. I was carrying our baby girl and we would hold her life with us as long as possible.

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